Living with Fibromuscular Dysplasia

I have been dealing with high blood pressure for the past 4yrs without any success at controlling it. I even had to double up on my blood pressure medication. In Dec. 2008 my dr heard a swooshing sound in my abdomen and sent me for an ultra sound of my kidneys and iliac arteries. They found a blockage in my rt kidney. I was then scheduled with angiogram and angioplasty if necessary. They had to do the angioplasty on my rt kidney.

My blood pressure is now back to normal. My rt leg however is a different story. The arteries to my right leg are extremely small and they couldn’t fit the catheter down to even view the vein. I have been in pain with my right leg for 9 years. They are unsure even if they can do an operation or not. So, at my follow up appointment my doc tells me that I have FMD. No explanation, no medical terms. So I looked it up online. When I saw all the different locations that this disease can affect I think I was a bit shocked and overwhelmed. My mother had trouble in the exact same areas and had stents put in. Each area of the diagram of where this affects was a stent.

Now, I am wondering the same. Could I have the exact same areas my mother did. They diagnosed her with PAD. She has passed away now, so it is hard request her med. records to find out. I am going in March for an ultra sound of my neck arteries with a follow up visit after. My vascular surgeon is lacksy daisy about the whole thing. I am now wondering if it would be in my best interest to go to a different doctor who knows about this and is familiar. Any Ideas?