Living with Fibromuscular DysplasiaThis section is a place to share stories about Living with Fibromuscular Dysplasia. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download FMD 
Hi, My name is Trish. I was diagnosed in April of this year. I have had High blood pressure since I was in my 30’s and no one ever mentioned a possiblity of checking renal arteries as a cause. I was told it runs in the family and was given meds. For several months I kept complaining of weight gain, fatigue, and my BP was fluctuating up and down. I kept going to the doctor and complaining and being told ‘you are depressed’. I said I am getting depressed from not feeling well. I refused to add more meds. Because I insisted on more tests, whatever they might be, my doctor said I will do a test but I know I won’t find anything. Well, guess what, he did find something and telling me ‘I was really surprised”. My right renal artery was blocked and had the artery opened with a balloon and didn’t do very well after and was in the hospital for 2 days. When I was told by the doctor I had FMD. My step daughter is a nurse and was with me, we asked what is FMD. he said I will write it down and look it up on the internet. I did find the FMDSA. And I did attend the conference in June. That website has a lot of information. And there is more testing and research going on to find the cause and hopefully a cure. Education for everyone is the answer. I am on a soapbox, because it is frustrating having a disease that many health professionals know nothing about it. We have to Tell them.
October 2008
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