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Living with Fibromuscular Dysplasia

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FMD OF 2 CORONARY ARTERIES
by: Dawna on Mon, Aug 04 2008
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I’m a 56 year old postmenopausal women, and have always considered myself healthy. On March 10, 2007 I suffered a heart attack I was seen at our local E.R. and after determining how serious it was, they flew me via air ambulance to Kelowna General Hospital for an angiogram. The angiogram showed a spontaneous dissection of the LAD (left anterior descending) along with a 99% blockage. I was then flown to Vancouver General for the angioplasty treatment where they placed 3 stents in the LAD. At this point no one told me about the FMD….just put me on Plavix and aspirin for life.

About 2 months later I started having shortness of breath and chest pain so they scheduled me for another angiogram. This time it showed that my RCA (right coronary artery) was 80% blocked, which had been totally clear 2 months ago, and the LAD also had 80% re-stenosis. This is when the Dr. actually informed me of the FMD disease. They put 3 more stents in the LAD artery, and 2 in the RCA. I now have a total of 8 stents in my heart.

At this rate of disease progression, I thought I’d be dead before the summer was out. I was also informed that I have FMD in both my femoral arteries, and in my iliac arteries as well. It’s been over a year since this all came about, and so far I’m doing well. If I get stressed, I sometimes will experience heart spasms, and I’ve been told not to participate in very strenuous activities as my coronary arteries are very friable.

I was off work for 6 months, but have been back part time for almost a year now and doing well. I struggle with the fact that I have this disease and it could re-occur. I’ve never been a smoker, but have suffered with migraine headaches and have been on fairly high doses of estrogen for years, which they think may be a contributing factor. I may also have a hereditary factor as my mother had 4 collogen type diseases. I wish there were more Doctor’s aware of FMD…..however, I’ve found web sites very helpful.


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Comments
  1. Fri, Sep 12 2008
    Dawna Thanks for your reply. It's good to know that someone out there understands what you feel. So far I haven't had a heart attack ( Thank God) . My...Read
  2. Thu, Sep 11 2008
    Dawna, Just wanted to let you know you are not alone. My heart attack was in 2004 and was dx as FMD in the LAD at VGH. I am from Surrey and have FM...Read
  3. Tue, Aug 19 2008
    I am a 64 year woman. Who was having problems and this is how they found FMD> I too have recently found out that I have FMD... The Drs don't tell y...Read

August 2008

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